Treatment Approach & Progress Measurement
Whilst these may sound rather obvious, it is easy to overlook a number of areas because one is focussing all one's efforts on treatments and supplements etc. whilst not having eliminated one or two things that we are doing that are extremely detrimental to our condition. Keep these principles in mind when reviewing the basic framework below. We will review the 'whats' and 'hows' of these principles on this web site.
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Guiding Principles
Basic Framework
Example of a Treatment Protocol Sequence
Understand the Process
Prioritisation - What The Body Most Desperate Needs
Evaluating Your Progress and Knowing When You Are Well
[Last Updated: 10 Nov 2015]
 
Guiding Principles:
The two basic guiding principles of treatment of Multi-System Illnesses, including Chronic Fatigue Syndrome, are in my opinion the following.
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Basic Framework:
I have found the following guiding principles to be of value when treating one's CFS and is applicable to a number of other Multi-System Illnesses. These are:
 
Example of a Treatment Protocol Sequence:
As a general rule, assuming one was afflicted with all of the major problem areas, then the sequence of treatment would be to begin the most critical mineral and vitamin supplementation as soon as possible, as well as a parasite/candida/bad bacteria treatment programme, a basic level of adrenal support. Once most of the parasite/candida/bad bacteria treatment had been completed, then a detoxification programme should be commenced (in addition to electromagnetic support), including cellular detoxification, and also kidney/liver/gallbladder/bowel cleanses and any skeletal/muscle work that is necessary. Once most of the detoxification and EM treatments have been completed, then more attention should be paid to other nutritional deficiencies and adrenal dysfunction, which will then hopefully be in a better position to actually be totally rectified. On a high level, detoxification and EM support (with some nutritional support) are often two of the most critical factors to recovery in recovery for CFS patients.
Of course, practitioners do not often agree on the correct protocols for treatment, the order of priority and the sequence of treatment, and this is why this web site exists, to educate the patient to make more informed decisions. Some practitioners are heavily focussed on cellular detoxification, which is the main goal or end goal in itself. Others are more focussed on supporting the body and have little interest in detoxification. Sometimes one can get bogged down in detoxification and anti-microbial treatments, and 'chase shadows', rather than really supporting and nurturing the body. Other times one can focus on supporting the body when what is required is direct intervention in detoxification. There is no hard and fast rule. It depends largely on the general state of your body and what is most urgently required.
Sometimes detoxification will be the highest priority. At other times, the patient would be best waiting before commencing a detoxification programme. There is a difference between being ready to detox and needing to detox. If one can significantly improve without detoxing, then one should wait and focus on nutritional and biochemical (etc.) support. If the patient is in bad shape and will make little progress with any supportive protocol, i.e. heavy metals or other toxins are the bottle neck, then detoxification should commence immediately, even if the patient is not really in the ideal state for it - albeit very gently (but using proven and effective methods). Immediate improvement should be seen in such cases.
In reality, with a good practitioner, testing what the body needs and how much kinesiologically will dictate many of the above steps and what supplements the body requires and when.
There is no 'one size fits all' programme for treatment as such, and the approach is always adapted to the individual's most critical fundamental needs at any one moment. Treatment programmes do not always go according to plan and one must be flexible and determine what the body most needs at any given point in time, and adapt one's approach accordingly.
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Understand The Process:
It is generally a good idea to understand the processes and supplements involved in your treatment. You should never take anything that you do not understand what it actually is. Ask your naturopath to explain eact supplement properly and why it is being used. You should not pay for or consume anything that you do not know what it is. Understanding what you are taking/doing will help you to measure your progress yourself in terms of symptoms and repeat test results/blood microscopies; and to see that each step you are taking is methodical and that you are indeed dealing effectively and completely with certain factors before moving on to the next (and the completion of each step is not just measured empirically through observing symptom changes but also through blood microscopies or actual test results, so one can be fairly certain it is complete); and ultimately to see that your chosen naturopath/specialist is in fact advising the best strategy for you.
In certain instances you can directly measure your progress by how you feel, how you are sleeping etc. However, in many cases this is not very scientific. To feel 'good' or 'better', a large number of biochemical changes have to occur in the body and a huge number of processes have to improve. Some treatments require consistency and to be kept up for a long time to show a good result. Often there are many variable factors and juggling and playing them off each other can be quite complicated. However, the general idea is to work with and support the body and give it what it most urgently needs, so in general, one should notice an improvement in the way one feels. The exceptions to this rule may be detoxification and harmful microbe removal which may cause side effects if done to excess. In the course of treatment we are analysing what the exact problems are that affect a patient and treat each specific problem. By cleansing the digestive system of parasites or candida for example may not make a massive difference to how a person feels. If you do not actually measure the effectiveness of each particular treatment for each problem, it is hard to know whether it has achieved any progress.
Feeling 'good' or 'better' is the ultimate goal, but what you really want to do is to fix all of your individual problems so that you can feel good and be well. The short term goals are not necessarily to feel better but to fix each of the core underlying problems, tackling the most chronic first. Feeling good will come with time! And when it does it will be on solid foundations of biochemical health, and not a fragile kind of 'wellness' that is easily tipped back to ill health by one's normal routine. It of course depends on the individual and the particular unique set of problems that that person has. Addressing and starting to treat one particular problem may indeed make the person feel immediately better. This may depend on its severity, how low it has existed for, the nature of the problem and how dependent its treatment is on other problems the person has. A significant shift in the nature of biochemical problems may be clearly observable using a variety of tests, but from the patients perspective, one type of 'feeling worn out and ill' is much the same as another, even though the exact nature of the sensations and recovery pattern may vary and evolve over time - to think that 'nothing has changed' would be a mistake, be they improvements or a downturn. If one is in an 'ill' condition continuously, one can tend to lose one's perspective and reference points, and only under scrutiny or questioning does one realise how one's pattern has changed over time.
Clearly symptoms are one piece of the puzzle, in addition to measuring the actual underlying problems what whatever means or skills are available to the particular practitioner or practitioners. A good practitioner will be able to measure the success of the treatment of each problem that an individual has, and tailor treatment accordingly as its goes through its time line. One has to use 'feedback' to measure the success of what one is doing, and to adjust the approach, make further tests, monitor symptoms, find out what the body wants or try out certain theories, until the approach works at that point in time. It is easy to 'give up' a certain course of treatment because you don't think you are making an noticeable progress or lose interest in it and stop. Nutritional deficiencies for example take a very long time to overcome, and a few weeks or a few months of supplementation isn't going to be completely effective. A good treatment programme requires accuracy, intelligence, flexibility, the ability to adapt with circumstances, commitment and self-discipline.
If you just rely on this web site and its contents alone, then you will not be taking responsibility for yourself or using your grey matter. Attempting to soley rely on 'self diagnosis' according to what you think sounds right and plausible, and selecting treatments accordingly, you will likely overdo some areas, engage in unnecessary treatments, get the order of priority wrong, and leave other issues and needs chronically untreated. You will not be able to measure your progress and tailor your treatments accordingly. You will likely flush a great deal of money down the toilet if you use this approach!
This web site does not promote the passive mindset, taking all information in a spoonfed fashion and to simply follow directions from a practitioner or otherwise without making an effort to understand the process and to judge one's own progress.
The ideal mindset in my opinion is one where one utilises the skill of others, and adds value oneself by observation and critical analysis, makes useful suggestions and so on, whilst exercising self-control so as not to simply take one's own treatment into one's own hands completely, with no input from professionals or test results to measure what one is doing. Ultimately one has to take responsibility for oneself.
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Prioritisation - Understanding What The Body Most Desperately Needs:
A detective would not make an arrest before having enough solid evidence (we assume!) Without witnessing the crime directly, he or she would look for clues and gather evidence. He would build a solid case against the chief suspect based on evidence and make the arrest. He would not arrest each suspect on the list (or everyone remotely connected with the victim) with only circumstantial evidence or his own prejudices to follow!
In the complex 'crime scene' of our body, we need to obtain definite measurements and observe symptoms and physiology as much as possible to determine what are the causes of our ailments. Therefore, prior to taking 100 different supplements as recommended by various certain sources, we need to find out what is actually wrong so we can then target it specifically. A heat seeking missile is more effective is taking down an enemy aircraft than anti-aircraft fire, which is not as powerful, or as focussed or targeted. If we simply throw everything we think might work at a complex set of problems, those few supplements or treatments that are taken that are actually needed by the body may only skim the surface and may not deliver what is really required in the right quantity. In other words, if too broad an approach is taken, then the most chronic problems may only get token attention and real progress is unlikely. Inappropriate and incorrect treatment is expensive in the long run and is wasting the patient's valuable time whilst chronic problems are crying out for attention and are getting progressively worse and are not being targetted effectively or sufficiently.
It is vitally important to explore all the major areas of possible problems and be extremely thorough at the start of a treatment programme. You cannot assume anything. In most cases, not all tests are taken at once, but a number of tests are undergone, which may lead onto other tests, depending on what the results yield. Symptoms are also taken into account. However, if you (or your doctor) assume anything, you may well overlook a major problem which will remain unresolved throughout your treatment and prevent recovery. For example, if you fail to identify chronic mineral and vitamin deficiencies, or toxic overload issues, then a hormonal system treatment programme is unlikely to be effective. If we were to consider the example of a first aider, he would scan a patient head to toe prior to prescribing emergency first aid. This is standard procedure. A first aider should therefore not miss any major injuries. This prevents errors like treating a hand injury whilst the patient actually has a gun shot or stab wound hidden under his jacket, or broken limbs, which are worse conditions that the most visible and easy to spot condition. An incompetent first aider would be scratching his head, as he had given the patient an attractive looking bandage on his hand, whilst the patient was bleeding to death from the gunshot wound and would look worse and worse, and would be groaning more and more before eventually passing out, and later dying.
The key, as with any 'detective work', is to examine the clues and evidence very carefully, approach it methodically, do not assume anything, and to be prepared to revise and adapt your (treatment) approach as you go along, based on new data, observations or conclusions that may arise with the passage of time; and to be rigidly locked into a certain regime or set of beliefs regardless of evidence to the contrary or the poor performance of your programme. Be flexible and adaptive. Keep your eyes open and observe what is going on around you without prejudice. Keep chewing over the known facts, and do not shut out certain possibilities or the lack of results out of your mind. Keep making decisions. Do not rule anything out based on personal prejudice. Do not rigidly hold onto any one type of treatment or cause purely for emotional reasons, at the expense of other treatments or investigations. Blinding oneself to the facts as they become apparent is not helpful. The 'real criminal' may be getting away whilst you keep an innocent but suspicious looking character in custody. And more 'crimes' against your body may yet be committed! However, unlike detective work, the nature or identity of the problem may evolve over time!
You may be wondering why this web site is so large and why you can't get a straight answer to treating CFS! And quite rightly too. However, identifying the exact nature of one's individual problems requires some skill. For example, amino acid conversion or metabolic dysfunction are not the same for each person. They vary according to the exact degree of above/below normal the levels of each biochemical compound are. Treatment therefore requires the practitioner to conduct tests to ascertain exactly which compounds are too high and which compounds are too low or not being converted properly. In addition, each condition may require a different approach depending on the individual.
Ultimately, the success of a treatment programme is dependent on many factors. Of great importance is the sequence of the treatment. One can view CFS as a condition that results from a collection of 'things' that you body is desperate for but is not getting. These may be the removal of toxic compounds that are interfering with the body's biochemistry and toxifying organs and also removing the overgrowth of harmful micro-organisms. These may also be deficiencies in vitamins and minerals that are preventing key bodily biochemical functions from taking place properly. These may also be deficiencies in bodily regulation through hormonal or metabolic dysfunction. Or a complex combination of all of the above, or other. It is therefore of critical importance to ascertain what your body needs most urgently on the most fundamental level and give it to it (in the quantities it wants and can deal with)!
Let's imagine a dehydrated, starving child for a moment. The child approaches you and asks for some water. You wouldn't give the starving child a ruler or a football! And neither would you give him just one drop of water, pipetted into his mouth. Nor would it be clever to drive the child to the nearest lake and throw him off the pier with a lead weight attached to his feet. It would be most decent to give the child what he asked for, perhaps a glass or bottle of water. Once he has had a drink, he might ask for some food. This doesn't mean he wasn't hungry before, he had been starving all along, but his thirst was the more desperate need at that point in time. Now that he has been given enough fluid, this doesn't mean his hunger is now still not important. If he does ask for some food, it is not clever to give him one raisin, or to ask your friend to come over with an articulated lorry and dump several tonnes of cooked rice on top of him. I think you get the general idea.
Let us look at an example. Your body may well require sleep desperately, but unless you address the various issues that are behind your sleeping problems, then you can't magically give yourself enough sleep. If you try to with medications, then you are missing the point. You need to address the urgent biochemical requirements and correct the biochemical dysfunction on the most fundamental and cellular level. These are the problems that your body is screaming for your to address. Only then will all the benefits of these processes actually occur, i.e. feeling good, sleeping properly.
To fail to identify one of the most chronic requirements of the body, and to therefore be unaware of it/ignore it, will seriously impede the overall success of your treatment and will simply prolong the end date further into the future or indefinitely. For example, in the case of specific mineral and vitamin deficiencies, if you do not immediately identify and begin to correct these at the start of your programme, you will never fully resolve any metabolic or endocrine dysfunction (e.g. insomnia) that you have. In addition, if you have a significant toxic burden, and ignore it because your physician does not consider it important, then you may well see further mineral displacement and an exaccerbation of your nutritional mineral deficiencies over time.
Many problems get worse if they are not treated, so if you miss anything at the start, you may well enjoy success in one area, but actually feel worse because other areas are not being addressed and are getting worse. As a general rule, for every day that you do not address any of your most chronic problems equates to pushing the completion date of your treatment 2-4 days further back. To not give your body what it most desperately needs on account of your physician's or your own arbitrary personal beliefs about treatment is akin to masochism! Unfortunately, giving your body a basic level of oxygen is an automatic reflex (breathing), whereas fulfilling our body's other chronic requirements isn't and is reliant on the natural state of affairs of proper diet and healthy living, which unfortunately we can't assume or take for granted! A certain amount of education and knowledge is required in today's society to give the body what it needs, especially for CFS sufferers. So remember to focus on giving your body what it most chronically needs, rather than looking for easy ways out to alleviate the symptoms of your underlying problems (without actually addressing the underlying problems).
It is tempting to learn about and pursue those types of treatment or testing that appeal most to your values, or to what you think makes sense, or according to what you understand about how the body works. Often this can lead to a limited and restrictive approach, and a tendency to overlook or give little credibility to different approaches or other techniques that do not fit into this model. Of course, whatever you try should be logical, methodical and be based on tried and tested experience. But don't let your own beliefs about how you think the process should work and what areas to focus on restrict your identification protocols, your overall progress and potentially waste years of your time. Often the way forwards may be complex and sometimes odd! Simplifying things too much and ascribing abilities to a process or supplement above and beyond what it is capable of achieving may not be helpful and may not really target all of the issues that need resolving. It may result in some critical issues being overlooked. Sometimes a solution to exact what the body needs may be staring you in the face, but you may not pay it much attention for years, and kick yourself about it afterwards once you try it and finally realise it was what your body needed all along. Try to keep an open mind and do not focus too narrowly. Never assume anything.
A CFS patient may well experience numerous crashes of energy during the course of his condition. Usually one bounces back from these in a matter of hours, days or weeks. It of course depends on the severity and also if one strains one's body on consecutive days or not. Quite often, a patient may experience a low point from where it is very difficult to come back from, and it may take a year or so perhaps to get back to where they were before the crash, despite taking minerals, detoxing, having acupuncture (or other energetic treatment) etc. (i.e. continuing the pre-crash regime that yielded such great successes after the crash). In such cases, it is best to try to analyse what is going on, what one was doing in terms of one's treatments, how far they had got, and what one did in the months after the crash. Through a process of elimination or deduction it should yield insights into what is going on. If a pre-crash regime when repeated after the crash has little impact, then one explanation is that the progress one was making because of what one was doing was based on the fact one's EM field had built up nicely over time and gave a solid platform on which to build on. This invisible safety net is then removed when one has a crash, but often one may not think about it when it comes to adjusting one's treatment in order to 'bounce back' quickly. For example, one can get very wrapped up in detoxification as a main source of improvement, but the main reason behind it is not noticed. One can compare what one was doing before each major crash one has had, and see that if detoxification wasn't such a big issue before the first crash, then it probably won't be after the second crash, unless something has happened in the interim. One of the main factors in this extent of crash is electromagnetic depletion and exaccerbation of present deficiencies. EM deficiencies are on the hardest things to overcome.
For example, my first major crash after beginning serious CFS treatment occurred after having a mercury amalgam filling removed, but unfortunately not following all of the correct protocols. This resulted in several months of unchecked and untreated mercury toxicity, resulting in feeling completely ill. Prior to this, progress had been excellent, just focussing on mineral and vitamin resuscitation, and also adrenal support with adaptogenic herbs. One could deduce that the toxicity caused the crash. However, would detoxing reverse the crash and bring me back to where I was (i.e. the week on week progress in wellbeing)? Ironically it was not for several months that the serious detoxification programme commenced (no thanks to the doctor seen at the time). Prior to commencing this programme, I had been feeling quite good again, and was feeling more resilient again, with week on week progress. However, overdoing things one day (many hours of driving and hours of meetings) caused a major crash again, but much worse. So it was after 12 months of detoxing heavy metals that I started to feel better again. I commenced a new detoxification regime, including PLXes, FIR saunas and detox foot patches. At this point, increased resilience and week-on-week progress returned! A few months later, I overdid things somewhat, a combination of moving house and also overdoing FIR saunas over a period of 2 weeks. This resulted in a major crash, and a weak liver, which took 3-4 months to more or less bounce back from. Now I resumed my detoxification regime after this, assuming that it would continue the progress, but it did to a limited extent. Over all this time, I had been following my usual mineral and vitamin supplementation, adrenal stimulation and energetic treatments. Yet the 'bounce back' after each major crash was slow, drawn out and unpleasant! Stress was probably not the main factor at work. One can deduce from this example that EM stimulation would have greatly helped in each case, as clearly the other factors were not helped as much as they should have been in a theoretical sense. The FIR and detox patches did clearly help a little with the EM stimulation, and so did the removal of many toxins, hence the quicker bounce back after the third big crash compared with the second. So detoxification was a good predisposing factor to slightly increased progress, but was not the be all and end all; toxicity was not the primary cause of disappointing progress.
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Evaluating Your Progress and Knowing When You Are Well:
How do you know when you are 'well'? Many people may determine their overall health by simply their symptoms, and when they believe most of their symptoms to have disappeared, may lose the incentive or motivation to continue with treatment or regular check ups and drift back to their previous lifestyle. If you are engaging in any 'project', you have to have an understanding of what your goal is, of where you actually want to arrive with your treatments. If we look at a reasonably large cross section of the population, the 'average' person may well be seen to be far from ideal and optimum biochemical and energetic health (and possibly skeletal/postural). If we want a 'cure', what do we want to be cured to? Cured back to being 'normal' or 'average'? Or cured to being at a level of health close to perfect, that perhaps we have never experienced before? The reason why people become addicted or psychologically damaged by drug abuse is that, why people become stuck in psychological patterns is that it is easy to lose one's absolute references for things. It really doesn't take long. Then we can't vividly remember what it was actually like before.
The same goes for CFS and other related conditions. If you have been ill for any length of time, with a likely lengthy and slow preceding downward spiral of health preceding this (perhaps accelerating at the very end to the strong symptoms you have experience), then it is likely you have forgotten the absolute references you have for feeling good or being in excellent health. Perhaps you have never enjoyed great health. Perhaps you have enjoyed reasonable health in the past. Clearly, the closer you are to energetic and biochemical perfection/balance (with no deficiencies or dysfunctions), then the less likely you are to have a relapse into your previous illness once you have been 'cured'. It is therefore important to consider the actual core problems contributing to your condition, and not just measure your progress solely by the extent of your symptoms. Often as one feels better, the difference in how one feels is alarming, and one can brush over the last 25% and assume at 75% that one is more or less. There is an incredible desire in patients who have been suffering for a long time to get back to their previous life, and so this enthusiasm can sometimes result in one getting too busy too quickly, once some of the symptoms have become more manageable, but which may well lead to minor reoccurring bouts of CFS. One may choose to ignore or deny one's remaining niggles as one really wishes to return to normality. Indeed, even if you perceive your symptoms to have disappeared, and stop treatment, can you really be sure that you have corrected all of your underlying problems?
Clearly, the best way to be sure is to have these checked out/tested, as part of the regular testing in your treatment programme. So I would recommend that you become focussed on measuring the progress of the actual problems, rather than simply measuring your progress by your symptoms alone. The whole concept of 'cure' is rather misleading as it implies a binary condition of either being sick or being well, and focusses the patient on symptoms of being 'ill' rather than looking at the overall picture. There is a large grey area between completely ill and optimal health, and at what point one considers oneself truly cured is a matter of philosophy and also what one uses to measure the result with. I would recommend that you do not 'close the case' until you have multiple pieces of corroborating evidence to suggest that you are 'completely cured and in optimal health' and all 'criminals' have been 'apprehended' and 'dealt with'.
Of course, it is up to the individual as to how well he really wants to be and how far he wants to go, his commitment to the treatment programme, his belief in the various treatments, his desire to identify all of their underlying problems (some may stop once they find one big problem and purely focus on this), and the speed at which he get to his goal. You may want to be at the pinnacle of health and continue the profound lifestyle and dietary changes indefinitely. Or you may wish to go back to 75% of your previous lifestyle, with some minor modifications and adjustments. Or you may wish to stop treatment when you are feeling more or less normal again, and fully return to you previous lifestyle, which may or may not have been detrimental to your health. Ultimately the choice is yours. There is no right or wrong. It is just cause and effect. It is your body. You decide.
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